Additional Resources

The following information is courtesy of Genzyme.

Jewish Genetic Disorder Organizations - Specific

• Bloom's Syndrome Foundation
• Canavan Foundation
• Canavan Research Foundation
• Canavan Research Illinois
• Children's Fund for Glycogen Storage Disease Research
• Cystic Fibrosis Foundation
• Dysautonomia Foundation
• Dystonia Medical Research Foundation
  
• Fanconi Anemia Research Fund, Inc.
• FD Hope
• MSUD Family Support Group
• Mucolipidosis IV Foundation
• National Gaucher Foundation
• National Niemann-Pick Disease Foundation, Inc.
• National Tay-Sachs and Allied Disease Association, Inc.

Jewish Genetic Disorder Organizations - General

• Chicago Center for Jewish Genetic Disorders
• Genetic Disease Foundation
• Jewish Genetic Disease Consortium
• Victor Center for Jewish Genetic Diseases

National Resources

• Bonei Olam
• Chai Lifeline
• Genetic Alliance
• March of Dimes Birth Defects Foundation
• National Organization for Rare Disorders (NORD)
• National Society of Genetic Counselors
• Office of Rare Diseases